Boy, it's been a while since I've blogged. Fiona is now 4 years old and in Jr kindergarten. She has to wear a helmet at school because she still has soft spots from the surgery. She is now 3 years and 3 months post op. We went to see Dr Phillips on Dec 3rd. I have had concerns for the whole year and he confirmed my worst fear...another surgery! The way she is healing is a mystery to him....of course it is, she's MY daughter.
She still has a number of soft spots on her skull, she also has had some bone resorption near her eye. They are going to make custom made titanium plates for the soft spots and a custom made implant near her eye. It is made with a material called "PEEK". Dr Phillips is also going to shave down the bone on her forehead where it grew too thick and is also going to make the scar thinner, it has gotten pretty wide over the years.
It's going to be a 3 hour operation and a 2-3 night stay....she is going to have a drain tube again.
She is having a CT done in the next couple of months under GA because there is no way that she would lay still while the CT is happening.
I wish I never heard the word cranio.
